Aggregating Genetic Knowledge
Cool new resource/clearing house for genetic databases and projects: the Genetic Alliance. It's a database drawing together some 600 organizations regarding over 1000 genetic conditions. Many of these, no doubt, are conditions few people have ever heard of: Trichorhinophalangeal syndrome? Refsum disease? The goal is to draw on the collective power and knowledge of the organizations that spring up for these relatively obscure disorders, so that they may more effectively lobby, educate, and spur research. Interestingly, it's funded in part by the CDC.